Sickie Update: Came home from the hospital after the PET/CT scan mentally and physically exhausted today. Even with a sleeping aid (Ambien) I was only able to get 5 or 6 hours sleep last night. Hubby has the same problem, but he doesn’t have a sleeping pill to help. Consequently, I’ve been snoring on the couch for a few hours, had a snicker bar, an apple, and an energy drink and now I’m beginning to zone in on today. I’ll probably be fully awake by bedtime.
Things are moving along pretty fast now. Yesterday we spent most of the day at the hospital I met and talked with my new oncologist for the first time. She’s a young woman who explains things pointedly and organized and leaves lots of time for questions. While the doctor visits I’m familiar with over the years are five minutes or so, this one was unhurried and I never felt I was being pushed along to get to the next patient. None of my internal organs were swollen or over sized, the blood work overall was good, and she seemed optimistic that we may have caught this cancer at the beginning. I’m not assuming anything at this point, though, and the best I can muster up is “cautiously” optimistic.
Even if my PET/CT whole body scan and the bone marrow samples from tomorrow turn out negative, I must still undergo a full treatment of a special cocktail chemo they call R-Chop. Even reading the list of “possible” side effects is ominous and there are great statistics of what they’re calling “cure” from this treatment. Everything rides on what today’s scan and yesterday’s biopsy reveal, which could alter the treatment somewhat. I still have one more test to do before the chemo Friday morning, an echo-cardiogram to make certain my heart is up to this great cocktail. So if all goes well, treatment Friday morning, not sure what to expect at this point but know there’s a build up effect so it may be later that I begin to feel the fatigue and nausea. Also, I can expect my hair to fall out possibly within 2 or 3 weeks. Often, it grows back in a different color (darker) and texture, sometimes even thicker. I’m putting my order in for silver and coarse enough to have body without permanents or color treatment and thicker would most certainly be good.
Many of you have sent me emails and I wanted to answer each personally, but haven’t been inspired to do very efficiently. I will over time catch up. Dr. Gilbert, the oncologist, says in a week or so I’ll be in the swing of things and things will begin to feel much more normal. I hope my postings are more interesting at that point but for now my wish is to inform rather than entertain. I wish you all good health–nothing like it!
Just a thought: It’s taken some doing to begin to get used to people saying “your cancer.” Even Hubby referred to it like that a couple times. I want to scream, “not my cancer…I didn’t ask for it…I didn’t want it…take it out!
Best thing I ate all day: The Snicker bar. I thought of Betty White with every bite.